Not Dead Yet!

Posted on 19 April 2008 by MommyKnows

So far … I am being told I have transverse myelitis. Go ahead and look it up on Wikipedia and please take note that I DO ... DO have control of my bladder and my bowel—- I repeat I DO have control of my bowel and my bladder.

I have the idiopathic sort (it means the idiots can’t figure out why … heeheehee).

It’s gotten a little bit worse over the past week. Hoping it doesn’t progress any further. The lesion is in my spinal cord at the c4 vertabrae, therefore, potentially everything below my chin could be paralyzed. Due to the fact that it came on quite slowly the doctors don’t think it will get much worse.

I skied today. I sucked! Due to a slight weakness on the left side of my body (thanks myelitis) I found it difficult. I was fun to get out and spend time with the kids. I figure I should get out and enjoy my legs while they still work.

Tomorrow I rest!

This is such a fun blog, eh? Come back and check on the status of my partial paralysis tomorrow.

MK xo
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28 Comments For This Post

  1. Tara R Says:

    um… I am so impressed that you managed to ski. Wow.

    Scary.

    Tara R’s last blog post..The birds have returned

  2. Hannah Says:

    Wow, that sounds quite serious! I am impressed that you even TRIED to ski. Look after yourself, okay?!

    Hannah’s last blog post..Made me smile

  3. Cocoa Says:

    Glad that you finally have a diagnosis. Sad that it could potentially lead to paralysis. And I can’t believe you tried to ski!

    Cocoa’s last blog post..The Demise of the TV

  4. Michelle Says:

    Oh, wow, I can’t believe it. I’m sending positive thoughts and good vibes your way. You keep that great attitude of yours, and take care of yourself.

    Michelle’s last blog post..baby turns three

  5. Noreen Says:

    Take it easy!!

    Noreen’s last blog post..Huggies CleanTeam: Dirty Kids vs. Bath Time

  6. Susy-Q Says:

    I am so sorry to hear about what you are going through. This must be frightening—for you and your family—yet you manage to keep a wonderful sense of humour. You are in my thoughts and prayers.

    Susy-Q’s last blog post..Mother Nature, bring it on!

  7. Carey Says:

    Your in my prayers. Praying that if this is what it is, that you are treated correctly with complete success.
    Glad you had fun skiing.

  8. Jenny M Says:

    Hugs for continued healing!!

  9. naomi Says:

    Your attitude is great, but I’m hoping you recover full use of everything ASAP…hope you caught it early.

    naomi’s last blog post..Scootababy baby carrier

  10. Erin G Says:

    Yikes…good for you for going out anyway. I’d probably be too scared.
    I usually refer to the Mayo Clinic website fro anything health related…so here’s a link to their TM page:
    http://www.mayoclinic.com/health/transverse-myelitis/DS00854

    Let me know if you need anything. :)

  11. Jenn B Says:

    “and please take note that I DO … DO have control of my bladder and my bowel—- I repeat I DO have control of my bowel and my bladder.”

    i know it’s not a “laughing matter”...but…well…(giggle). glad you’re in good(ish?) spirits about it.

    Jenn B’s last blog post..Geek Humor

  12. Cindi Says:

    Hi, I have been thinking about you. It is good to hear from you today!
    I hope you do not progress any further. Is there something that can be
    done with the lesion and the illness? God bless…..Cindi

  13. Ann Says:

    We’re all thinking about you! Keep up the good spirits, that’s already half the battle!

  14. Kait Says:

    Heavens! I’ll be thinking about you!

  15. Deb Says:

    Yikes! I hope things turn around (for the better, of course) soon for you! I’ll be thinking of you!

  16. Erin Says:

    Your in my prayers, Kim. This sounds pretty serious, and it seems that you are maintaining as positive an attitude as possible…thinkin’ about you, take care of yourself, and keep us posted

    Erin’s last blog post..Catchin’ Up

  17. katie bowen Says:

    ah! so i stop checkin your blog for a week or so and THIS is what happens! send u a big hug! we’re having wierd health things going on too! all the best…

  18. Ok, Where Was I? Says:

    Is it wrong to say that you’re funny on a post like this? I mean, I did chuckle. But really, I hope things go well.
    Sarah

    Ok, Where Was I?’s last blog post..Bossy Was Here

  19. artsweet Says:

    SCARY! Oh my goodness, Kim, this sounds absolutely terrifying. I am amazed that you are as chin up as you are – please know that our thoughts are with you and your family.

    artsweet’s last blog post..Does Anyone Have “Clean Little Secrets”?

  20. Crabmommy Says:

    Kim!
    OMG! I have’t been to MK for a while now and visit to find…this, instead of my usual sassy friend and her sassy swaggy giveaways!
    I wish you a speedier-than-speed-of-light recovery and am so sorry to hear you are not on top form.
    I looke dit up. It does not sound like fun.
    Sending best, fanciest, most intensely focused get-wells-soon vibes
    your pal, C xxx

    Crabmommy’s last blog post..FREE STUFF: Swagilicious Designer Swimwear Giveaway from Land’s End

  21. sara Says:

    wow you are going through a lot. I hope that your recovery is very fast. Take care!

    sara’s last blog post..Shopping

  22. Noreen Says:

    I hope you are doing well, I have been thinking of you

    Noreen’s last blog post..Huggies CleanTeam: Dirty Kids vs. Bath Time

  23. Carey Says:

    Just checking in on you. Hope you are feeling better!

  24. katie bowen Says:

    since there isn’t any new news i’m a little worried about you dearie! know that you’ve been in my prayers and i’m hoping you’re doing better.

  25. lace Says:

    I hope all is well.

    lace’s last blog post..Ice Cream!

  26. Kim Says:

    We are still thinking of you!

    Kim’s last blog post..It appears as though Luci won!

  27. Nick Says:

    Hi Kim,

    Maybe you remember me, maybe not. I ordered clothing for my son from you 2 years ago and was stunned with your customer support when my package was last in the mail and you send me all clothing again, for free!

    My family and I wish you to beat your illness and recover quickly. I know there is a lot of chances you will.

    With love from Russia,
    Nikolai and family

  28. *andie* Says:

    Holala!!
    I did not come here since so long… I found you are so courageous (is it the right word in english???). I am not sure I got everything but I understand enough to know that it is serious.
    A thousand of thought for you and your family.

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