Tag Archive | "ms"

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A Daily Reminder …

Posted on 06 September 2009 by MommyKnows

Early this spring, I developed lymphadenopathy to go along with my MS. One of the rare side-effects of one of my drugs, is disease of the lymphnodes, and once all the other culprits were ruled out (I was convinced I had cancer), my neurologist decided I needed a break from my medications.

YIPPEE!

everyday i am reminded

The best part about being off of the medication was the fact that I started to forget that I had MS. With no drug side effects, I felt perfectly healthy. With no daily (and 2x on Sunday) injections, days could go by without me even thinking about MS. It was good.

The break is over now and I’m back taking the drugs. I feel OK, but, I am dragging my feet, but just a wee bit. I don’t quite feel right. Maybe it’s my imagination, maybe it’s not.

As far as MS goes, most of the fear is gone (for now). Occasionally, I worry about what my future may hold. Mr. MK, gets to make me feel better.

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Spinal Tap (check)

Posted on 20 May 2009 by MommyKnows

The spinal tap went remarkably well, it was virtually painless. I was impressed. I’ve had epidurals, so I was pretty sure I knew what to expect. The epidurals were all administered in the throws of labour, so I wasn’t sure if they were painless OR if the pain was just minor in comparison to massive uterine contractions.

I was one of those women who hollered at the anesthesiologist, “forget about the stinkin’ side effects, just shut-up and get the damn needle in my back!”.

WARNING: DO NOT under any circumstances decide to speed up your labour, by turning up the oxytocin rate/dose in the IV drip all by yourself.

I have the world’s 2ND worse backache … it fades when I lay down. BONUS –> I love an excuse to get horizontal.

Spinal tap kit
This is the creepy ‘lumbar puncture kit’ … they took three large tubes of spinal fluid. I was going to get the med-student to take a picture of the procedure, BUT I figured I wasn’t up to seeing my back-fat in photos, AND I like you all way too much to put you through it.

Bloody tests
Just when I thought I was done, they remembered that they needed blood to go along with the spinal fluid. Again not a big deal … I am just kind of sick of the ‘bloody needles’.

Speaking of needles, I am off my MS drugs until my ‘lump’ is diagnosed. I am so happy to go injection free for a while. YIPPEE

My ultra-sound is tomorrow and then it is back to waiting … and waiting …

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A Month of Hope

Posted on 01 February 2009 by MommyKnows

I’ve joined the shutter sisters one word project. I’ve chosen the word ‘hope‘. I will take a photo each day with this word in mind and upload it to the shutter sisters feed on flickr. I figure it should be easy enough, as I’m doing the project365 already. It gives me some direction.

8/365 - hope 1
photography 8/365 ~ hope 1/28

I’ve started to dread this Avonex shot I take on Sunday. It’s not so much that it hurts, it’s just long, and it is difficult to give. I am far from the ‘delicate woman’ sort (especially to look at), but this shot makes me weak, faint, woozy.

At the same time, this medication gives me hope. I hope I don’t relapse. I hope while it keeps me healthy, a cure is found for MS.

Tell me what you’re hoping for today.

MK xo
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My Period (man friendly post)

Posted on 14 December 2008 by MommyKnows

The period key isn’t working on my laptop

In order to keep this post organized and refrain from having the world’s longest run on sentence, each sentence will live on it’s own line

Imagine there is a period at the end of each line

What a pain in the ASS

I am able to copy and paste periods from other places, so when absolutely necessary they may appear

I have all kinds of great posts coming this week

Contests (itunes and book), a great toy review (if you’re not done your shopping don’t miss this) and holiday happiness posts

Mostly I’ve been busy wrangling Georgia

Crazy Georgia
She’s pretending to be a dog here

She’s quite convincing, she scared her friend enough to make her want to go home (OH Georgie!)

My MS drugs suck

Daily Shot
This was taken about 2 minutes after the injection

Getting the injection doesn’t hurt, but about 30-45 seconds later it starts to sting, swell and turn red

Within a couple of minutes it looks like the shot above and it stings like a WASP

LIKE A WASP!

That isn’t the worst part though, the worst part is that about 12 hours later it looks like an egg (a super itchy egg) has been injected under the skin (too vain to show you photos of that)

It is just too ugly

The good news is: IT’S WINTER YAY (like -30c winter) and this bloody ugly mess is well hidden under my December wardrobe of cozy fleece PJ bottoms

I’ll be back soon, cheerier, with colorful happy photo’s and a better attitude – SOON!

MK xo
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My Very Own …

Posted on 28 November 2008 by MommyKnows

I have my very own fashion VICTIM!

Fashion Victim
Yikes!

Me: Georgia, why don’t you wear your pink boots? They’ll match.

Georgia: These match.

Me: No, they don’t.

Georgia: Yes, they do, they both have flowers!

Who can argue with logic like that? Not me –> Go for it kid!

Also take note, the boots are on the wrong feet. She is perfectly aware of this, apparently she likes them like that.

Mmmmm ...
I just added this picture, because I love her blond curls.

The crappy photos were taken on my iPhone. Georgia and I spent the a.m. at the hospital (those crappy toys aren’t ours). I’ve been off balance and staggering around like a drunk. It’s like reliving my 20’s, without any of the fun. MS sucks!

All comments and back-links for this post will be entered to win one of two Power Ranger action figures (includes shipping and handling) in my ‘Power Ranger Giveaway’. If you comment and blog about the Giveaway you’ll receive two entries (too easy). I’ll randomly choose two winners on December 1st, 2008 @ 9 p.m. –> make sure to come by and enter often.

MK xo
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