Early this spring, I developed lymphadenopathy to go along with my MS. One of the rare side-effects of one of my drugs, is disease of the lymphnodes, and once all the other culprits were ruled out (I was convinced I had cancer), my neurologist decided I needed a break from my medications.

YIPPEE!

The best part about being off of the medication was the fact that I started to forget that I had MS. With no drug side effects, I felt perfectly healthy. With no daily (and 2x on Sunday) injections, days could go by without me even thinking about MS. It was good.

The break is over now and I’m back taking the drugs. I feel OK, but, I am dragging my feet, but just a wee bit. I don’t quite feel right. Maybe it’s my imagination, maybe it’s not.

As far as MS goes, most of the fear is gone (for now). Occasionally, I worry about what my future may hold. Mr. MK, gets to make me feel better.

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Winner is: Tenille —> email me @ kim (@) mommyknows (dot) com.

Today was a HUGE day for me. I started a ‘clinical drug trial’ to treat my MS. For the next 3 years I will give myself 8 injections a week (7 subcutaneous and 1 intramuscular). I spent the day at the hospital learning how to give myself the injections, parting with about 1/2 cup of blood for another ‘clinical trial’ involving genetics and doing all kinds of tests to measure the level of my disease (pretty low I think).

Just look at what I brought home. This is a three months supply. Value $12500.00 –> good thing it was free. I have to keep it all in the fridge, the pharmaceutical company is supposed to bring a ‘fridge lock box’ tomorrow, mostly so Dennis the Menace Georgia won’t get into my stash. They would be deadly for little people.

I’ve never given myself any sort of needle, except for the time in ‘year one’ (about 7th grade) when I pierced my ears with a sewing needle during a math lesson at Dubai College (really attentive teacher). However, giving myself the first two shots turned out to be easy … really, really easy. I’m good … really, really good.

I am relieved giving the injections was so easy. Now I am hoping the side effects are minimum. I am taking 2 drugs, both currently used to treat MS, just not together. One or the other maybe a placebo, but I am guaranteed one drug that works. Both have a BIG looooong list of side effects –> some pretty nasty. So far, so good.

I’ll keep you posted.

All comments and back-links for this post will be entered to win a $10 Starbucks Gift Card (includes shipping and handling) in my ‘Have a Coffee on Me’ Contest. If you comment and blog about the contest you’ll receive two entries (too easy). I have a whole ’schwack’ of Gift Cards to give away, so make sure and come back often for a chance to ‘have a coffee on me’.

MK xo
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