Early this spring, I developed lymphadenopathy to go along with my MS. One of the rare side-effects of one of my drugs, is disease of the lymphnodes, and once all the other culprits were ruled out (I was convinced I had cancer), my neurologist decided I needed a break from my medications.

YIPPEE!

The best part about being off of the medication was the fact that I started to forget that I had MS. With no drug side effects, I felt perfectly healthy. With no daily (and 2x on Sunday) injections, days could go by without me even thinking about MS. It was good.

The break is over now and I’m back taking the drugs. I feel OK, but, I am dragging my feet, but just a wee bit. I don’t quite feel right. Maybe it’s my imagination, maybe it’s not.

As far as MS goes, most of the fear is gone (for now). Occasionally, I worry about what my future may hold. Mr. MK, gets to make me feel better.

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I’ve joined the shutter sisters one word project. I’ve chosen the word ‘hope‘. I will take a photo each day with this word in mind and upload it to the shutter sisters feed on flickr. I figure it should be easy enough, as I’m doing the project365 already. It gives me some direction.

photography 8/365 ~ hope 1/28

I’ve started to dread this Avonex shot I take on Sunday. It’s not so much that it hurts, it’s just long, and it is difficult to give. I am far from the ‘delicate woman’ sort (especially to look at), but this shot makes me weak, faint, woozy.

At the same time, this medication gives me hope. I hope I don’t relapse. I hope while it keeps me healthy, a cure is found for MS.

Tell me what you’re hoping for today.

MK xo
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We finally made it home, about 2 a.m. I missed the hotel breakfast this morning! One of my favorite things about holidays is, no cooking. I just can’t get excited about food prep (not that I try).

I had to take my ‘bad’ drug last night. I am taking two types, one by injection daily with minimal side effects and a second weekly by injection (last night was the night) and it takes it’s toll. I had a terrible night and lazy, sleepy day. Chills, aches and flu like symptoms all day.

If I weren’t doing the Nablopomo thing, today would be the day I’d skip posting. I know you didn’t come over here to hear me whine though. Right?

I’ve been going downloading and sorting the holiday pics.

This is one of my favorites (so far) –> it is Lizzy being getting her ‘Libby Du’ at the LibbyLu shop in Downtown Disney. There are loads more to go through.

I am not sure if I like the Libby Lu idea or not. Then again, it might just be because I would have rather poked myself in the eye with a sharp stick, than had a ‘Princess Makeover’ at the same age. BLECH! I did love how much she enjoyed herself though. You could tell that she felt beautiful all day.

MK xo
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