Early this spring, I developed lymphadenopathy to go along with my MS. One of the rare side-effects of one of my drugs, is disease of the lymphnodes, and once all the other culprits were ruled out (I was convinced I had cancer), my neurologist decided I needed a break from my medications.
YIPPEE!
The best part about being off of the medication was the fact that I started to forget that I had MS. With no drug side effects, I felt perfectly healthy. With no daily (and 2x on Sunday) injections, days could go by without me even thinking about MS. It was good.
The break is over now and I’m back taking the drugs. I feel OK, but, I am dragging my feet, but just a wee bit. I don’t quite feel right. Maybe it’s my imagination, maybe it’s not.
As far as MS goes, most of the fear is gone (for now). Occasionally, I worry about what my future may hold. Mr. MK, gets to make me feel better.
Me: Do you think, I’ll be crippled?
I know I should have said, handicapped or something more PC, but I didn’t.
Mr. MK: No.
Me: Don’t you ever worry about it?
Mr. MK: I used to, I don’t anymore.
Me: So you think I am going to be fine?
Mr. MK: Yes.
My Mr. MK, he’s just hard to shut up, as you can tell he talks a mile a minute!
Me: If I’m not, you’re not going to run off with some young thing, and leave me and the kids high-and-dry with nothing but wheelchair ramps are you?
Mr. MK: BWAHAHAHAHAHA … I love you! You’re such a DORK!
I am pretty sure that means he’s sticking around. Reason number 23,456,789 I glad I am married to him!
MK xo
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September 6th, 2009 at 13:13
awww….sounds like a keeper. :) hope the meds get to doing some GOOD for you! sheesh that sounds annoyingly backwards!
Jenn B´s last blog ..Meal Planning for Neurotic People
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MommyKnows Reply:
September 10th, 2009 at 08:36
He’s definitely a keeper.
It feels backwards. I’m not quite convinced the meds are the best thing for me.
mommyknows (kim)´s last blog ..A Daily Reminder …
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September 6th, 2009 at 13:48
I truly hope you are feeling better. Keep up the positive thinking, it can go a very long way!
Watch Reviews
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September 6th, 2009 at 17:56
I hope the best for you.
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September 6th, 2009 at 19:49
Sounds like you snagged yourself quite a good husband. So glad you got a med break…stinks that it can’t be permanent.
Madeline´s last blog ..Explorations Continued
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MommyKnows Reply:
September 10th, 2009 at 14:50
@Madeline – thanks, I sure did, he is one of the best.
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September 6th, 2009 at 19:54
Girl — you are SO lovable — and that is why you are loved — and why nobody is going anywhere no matter what happens in your life. And unlike the previous commenters, I am telling you that your man knew he won the lottery when HE ’snagged’ YOU!
Hope you are felling better. And despite the fact that needles are yucky … you took an awesome pic of them. They actually look “cool”.
Love,
Jodi
Jodi Renshaw´s last blog ..A T-Shirt For the Good of All.
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MommyKnows Reply:
September 10th, 2009 at 14:49
@Jodi – Thank you! You almost had me tearing up. YOU are so kind.
I am going to make my hubby read your comment everyday ;)
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September 7th, 2009 at 06:21
YAY! I am so glad to have had the chance to meet and hang out with you, a bit. Your strength, combined with an awesome sense of humor, is SO inspiring to professional dorks, like me :) Hang in there and I agree with Jodi…only you could make needles look cool!
Liz@thisfullhouse´s last blog ..Is It Any Wonder I’m Not the President of the PTO
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MommyKnows Reply:
September 10th, 2009 at 14:47
@Liz – I am so happy to have met YOU! Thank you!
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September 7th, 2009 at 06:50
I’m glad you’re keeping your humor about this. MS is rough and the better your attitude, the better your run will be. My dad has been a lifesaver for my mom as she has struggled with it. Such blessings in trials.
Amber’s Crazy Bloggin’ Canuck´s last blog ..Bladdering On–Mass Destruction by Night
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MommyKnows Reply:
September 10th, 2009 at 14:47
@Amber – Thanks Amber, besides the initial relapse, I haven’t had much trouble. The drug side effects are really, my only problem. I am lucky. Thanks for sharing about your mom.
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September 7th, 2009 at 07:35
Yes, I hate taking drugs for things too. The side effects are unbelievable, I sometimes wonder if they’re worse than the actual ailment. I remember that stuff I was taking for my asthma, and all of a sudden I had no taste buds. I think it took about 3 months after I stopped for them to come back.
At least you got a break from them. Maybe your doctor knows of some other drugs that have different (but better) side effects.
I’m happy to hear you don’t have cancer. And now you can stop worrying about that :)
jafer´s last blog ..Twitter Weekly Updates for 2009-09-06
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MommyKnows Reply:
September 10th, 2009 at 14:45
@jafer – sadly enough, there are only 4 drugs ok’d for MS treatment in Canada. I am taking two of the four, of the two left, one is the same as one I am taking currently in a different dosage (same side effects), and the 4th is not covered unless you are in very dire straits. It pretty much this or nothing, nothing sounds better to me, but I am afraid of nothing.
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September 7th, 2009 at 14:06
You have a great sense of humour – that is bound to keep you healthy! That and a great, supportive, loving husband. Keep your chin up! You’re awesome!
Lullaby Baby Carriers´s last blog ..What is Attachment Parenting?
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MommyKnows Reply:
September 10th, 2009 at 14:41
@ X @ lullaby baby carriers – thank you, humor helps.
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September 7th, 2009 at 16:26
Why is it, their response to every emotional question includes the phrase “You’re such a dork”? My husband too makes that reference, wait…maybe it’s because in my case I ask hugely unjustified insecure questions, “If my hair turns grey, my butt sags and my boobs look more like breakfast pancakes than boobs will you still love me?” or the classic, “What are you thinking? How ’bout now? Seriously, what-are-you-thinking?!” He always laughs, throws in his own reassurences and then calls me a dork. Sounds like our guys are cut from the same, sweet, often sweaty cloth (we’re lucky girls!)
Hope you’re feeling well and know that prayers and positive thoughts are being sent your way.
Ashley´s last blog ..The Great Adventures of SuperMom!
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MommyKnows Reply:
September 10th, 2009 at 14:40
@Ashley – I am hoping there is a reason, and it’s not just because we are DORKS! Lucky dorks that is.
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September 7th, 2009 at 21:53
Hey you… wow… what a great picture, you turning it into a beautiful thing is very cool. ((hugs)) to you. I was actually coming to tell you that I posted the recipe for the soap. I adjusted b/c we have a couple of people with really sensitive skin… but this works fabulous!!
Brande´s last blog ..Laundry Soap Recipe
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MommyKnows Reply:
September 10th, 2009 at 14:39
@Brande – thank you! I have the soap recipe written down. Now I just have to find the naptha soap.
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September 8th, 2009 at 09:59
He sounds like such a wonderful man!! A keeper!!
I hope you feel better soon. I used to take insulin during my second pregnancy. I will never, ever complain about that again after seeing the huge mountain of needles you’ve had to inject. YIKES!!
I hope you are getting lots of rest.
One Scrappy Gal´s last blog ..Hair help!!
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MommyKnows Reply:
September 10th, 2009 at 14:39
@OSG – He is wonderful. Definitely a keeper.
I am not sure that if I keep taking these drugs, that I will ever feel better.
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September 8th, 2009 at 18:47
He sounds so cute! Glad he loves you so much. :) And yay for a break!
Safire´s last blog ..Almost here!
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MommyKnows Reply:
September 10th, 2009 at 14:38
@Safire – he is really cute (in a manly cute kinda way). I am glad he loves me too.
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September 8th, 2009 at 19:29
Very touching post, i hope and pray for your condition cure. Your Mr. MK is very loving, your blessed with him around. :)
Acai berry blog´s last blog ..Acai Energy Drink
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MommyKnows Reply:
September 10th, 2009 at 14:37
@Acai – thank you!
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September 9th, 2009 at 13:13
Oh, bless your cotton sock! He sounds lovely!!!
Pxx
Pauline Graham´s last blog ..The flowers
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MommyKnows Reply:
September 10th, 2009 at 08:38
@Pauline – He IS lovely!
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September 9th, 2009 at 14:22
I love Mr MK!! What a great guy. You really are blessed to have him. And although you’d hope any good husband would say that to his wife, sadly I’m sure a lot of them wouldn’t. So you’ve got a keeper there!
It must be so frustrating to feel so well & healthy when you’re on a drug holiday! That’s so wrong … but of course we know the medication is needed to slow the progression and prevent relapse, yada yada yada … I can’t even imagine how good it must have felt for you to have a break from it though, even just for a while.
Hannah´s last blog ..Berry Sweet
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MommyKnows Reply:
September 10th, 2009 at 08:37
@Hannah – me too! I am blessed really.
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September 10th, 2009 at 11:43
Hello my friend, I miss you, you made me laugh!! hope you feel better soon. Love the pic!! Hugs
Silvia´s last blog ..KRAFT Y LAS BLOGUERAS/KRAFT AND THE BLOGGERS
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MommyKnows Reply:
September 10th, 2009 at 14:35
@Silvia – I miss you too. I am glad you laughed :) Going to head over and read your Kraft post.
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September 10th, 2009 at 12:02
Reading your post was a wake up call for me for always taking for granted good health. Thank you for your wonderful and cheerful piece. Keep up your spirits!
Cheap Adult Halloween Costumes´s last blog ..Costume for Pink Ladies in Grease
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September 13th, 2009 at 21:33
If that’s a good effect on you, then that’s really great. I wish you all the very best.
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September 14th, 2009 at 01:01
Ow… That really fun… Thanks to coloring my live with your articles…
astindietpi´s last blog ..Fastin Truth
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September 14th, 2009 at 22:26
Mr. MK is really great. Hope you’re getting well now. Think positive always. You don’t need to lose hope. Just believe that you’ll get well. Wish you all the best.
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September 15th, 2009 at 13:32
@Sharmaine – He is pretty great Sharmaine! Thanks for stopping by and leaving a comment. I really appreciate it.
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September 15th, 2009 at 13:34
@bob — Thanks for stopping by and leaving a comment. I really appreciate it.
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September 15th, 2009 at 13:36
@astindietpi — Not really all that fun! However, thanks for stopping by and leaving a comment. I really appreciate it (it’s fun).
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September 15th, 2009 at 21:04
That is some photo of them awful shots, MK!
Why don’t I live near you? I think I owe you some monumental vats of soup and trays of lasagna so you can drag your lovely MK feet as long as you need without worrying about the little critters’ tum tums.
I am thinking of you. Yes, you are lucky to have Mr MK, I am sure it’s true: but methinks he is luckier to have you. [I mean, if we're going to make a contest out of it, you are always going to win for me, dearest MK!]
Love, and bestest, most uncrabby vibes Crabmom. By the way did I tell you lately that i think you completely rock? Yes you do. You are a force to be reckoned with, and I am duly humbled.
Crabmommy´s last blog ..Feeling Crabby
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September 16th, 2009 at 05:28
Mr. MK is really loving. You are blessed to have him around. Spirits must be kept up. Wishing the best for you. Get well soon
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September 16th, 2009 at 23:53
Yeah… this hear that Mr. MK is nice person… Positive thinking will heal our cell…
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September 17th, 2009 at 02:21
Great read.
Christopher Lance´s last blog ..CML Retail
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September 17th, 2009 at 04:59
I’m glad you’re keeping your humor about this. I hope the best for you.
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September 17th, 2009 at 10:41
How scary it must have been to think you might have cancer on top of the MS – glad it was “just” the medications!
That guy of yours is a keeper – sending you healing thoughts and hoping you truly ARE going to be OK!
Be well – Kacey
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October 22nd, 2009 at 11:38
Hello MK, what MS medication are you using? my wife had two MS “attacks” (she couldn’t move one limb) and she’s taking a drug called Betaferon. 5 years of injections haven’t leaved any side effect right now. I think it is still very new, but i think you may ask your doctor.
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December 7th, 2009 at 22:49
I love your blog – I just found you while late night surfing and I love that you documented this conversation. My mom has MS and it’s nice to know that other families ‘handle’ the conversations about MS the same way we do.
Amy´s last blog ..Monday Mingle: December 7th, 2009
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MommyKnows Reply:
December 8th, 2009 at 10:37
@Amy, Thanks for stopping by Amy. Sorry to hear your mom has MS. It stinks!
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